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Rare Diseases Clinical Research Network
Results: 64

#	Item
31	National Center for Advancing Translational Sciences (NCATS), Office of Rare Diseases Research (ORDR) ORDR stimulates and coordinates research on Add to Reading List Source URL: www.rarediseases.info.nih.gov Language: English National Institutes of Health Medical genetics Genomics Cancer research Rare disease National Human Genome Research Institute Rare Diseases Clinical Research Network Genetic disorder Human Genome Project Biology Genetics Medicine
32	News Release June 12, 2014 Neuromuscular disease network will enhance Canadian research and clinical care Neuromuscular diseases are a significant burden on the Canadian healthcare system and families Add to Reading List Source URL: muscle.ca Language: English - Date: 2014-06-11 18:23:48 Muscular Dystrophy Canada Canadian Institutes of Health Research Neuromuscular disease Neuromuscular Disorders Weakness Rare diseases ALS Society of Canada Limb-girdle muscular dystrophy Health Medicine Muscular dystrophy
33	Angelman Syndrome T I P S A N D R E S O U R C E S Add to Reading List Source URL: vkc.mc.vanderbilt.edu Language: English - Date: 2014-03-13 17:36:15 Rare diseases Syndromes Genodermatoses Angelman syndrome Autism UBE3A Autism spectrum Rare Diseases Clinical Research Network Developmental disability Health Medicine Neurological disorders
34	Molecular Genetics and Metabolism[removed]–22 Contents lists available at ScienceDirect Molecular Genetics and Metabolism j o u r n a l h o m e p a g e : w w w. e l s ev i e r. c o m / l o c a t e / y m g m e Add to Reading List Source URL: www.coriell.org Language: English - Date: 2014-02-06 16:14:40 Science Biobank Disease registry Clinical surveillance Clinical trial ClinicalTrials.gov Rare Diseases Clinical Research Network National Institute of Child Health and Human Development Biobank ethics Medicine Health National Institutes of Health
35	Microsoft Word - Aggregate SEP Roster Oct 2014 Council[removed]final.docx Add to Reading List Source URL: www.niams.nih.gov Language: English - Date: 2014-07-17 10:56:29 Rare Diseases Clinical Research Network Middle States Association of Colleges and Schools Michael D. Lockshin Rheumatologists
36	3rd Quarter, 2012 Dr. Eric Gou Protect the Future’s Newest Doctor The Protect the Future (PTF) program is one of the most important programs the APF. To explain, the present porphyria experts have been the major sourc Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:31:53 Medicine Erythropoietic protoporphyria Variegate porphyria Hereditary coproporphyria Heme arginate Afamelanotide Hemin Hydroxychloroquine Rare Diseases Clinical Research Network Porphyrias Chemistry Health
37	September, 2010 Erythropoietic Protoporphyria (EPP) Clinical Trials — 83 Research Volunteers APF members throughout the country have volunteered as research patients for the EPP clinical trials with afamelanaotide, no Add to Reading List Source URL: www.porphyriafoundation.com Language: English - Date: 2014-02-26 18:34:00 Rare diseases Porphyria Acute intermittent porphyria Erythropoietic protoporphyria Tetrapyrroles Porphyrin Sulfonamide Rare Diseases Clinical Research Network Afamelanotide Chemistry Porphyrias Health
38	April 10, 2013 Griffin Rodgers, MD, MACP Director National Institute of Diabetes and Digestive and Kidney Diseases Building 31 - Claude D Pepper Building, 31 Center Dr, Room 9A52 Add to Reading List Source URL: www.asgct.org Language: English - Date: 2013-04-10 16:01:08 National Institute of Diabetes and Digestive and Kidney Diseases Rare Diseases Clinical Research Network Samuel Dagogo-Jack National Digestive Diseases Information Clearinghouse National Institutes of Health Medicine Health
39	The NIH Clinical Center and the future of clinical research Add to Reading List Source URL: www.nature.com Language: English - Date: 2011-10-11 13:43:45 Research Nursing research Bethesda Maryland Cancer research Clinical trial National Institute of Mental Health NIH Intramural Research Program Rare Diseases Clinical Research Network Medicine Health National Institutes of Health
40	National Diabetes Data Group Add to Reading List Source URL: diabetes.niddk.nih.gov Language: English - Date: 2011-07-14 11:27:19 Medicine Epidemiology Rare Diseases Clinical Research Network Mitchell Lazar Health National Institute of Diabetes and Digestive and Kidney Diseases Epidemiologists